The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain
unclear in domestic laws. In addition to this, such a right has been criticised at the theoretical
level as being in contradiction with patient's autonomy, with doctors' duty to inform patients,
and with solidarity with family members. This happens especially when non-disclosure
poses a risk of serious harm to the patient's relatives who, without that vital information …

The Right Not to Know: An Autonomy Based Approach–A Response to Andorno

G Laurie - 2004 - era.ed.ac.uk
The author comments on the question of a right not to know genetic information, in a
response to Dr Adorno. The article discusses similaries shared between Laurie and Adorno,
with the former differentiating his views by focussing on a privacy based approach, as
opposed to an autonomy based approach.
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